Thursday, March 21, 2013

I'm Still Here

Well, I think I set a record for time between posts (not counting the Already There lyrics). We are staying VERY busy with therapy and, you know, this little thing called a two year old. It's really shocking how much time recovery takes out of the day.

I'm still doing rehab. I have been at the same place (HealthSouth) since October but recently (as of Wednesday) changed locations (SAMC Therapy Services - the Neurologist recommended pool/water/aqua therapy which HealthSouth no longer has). It was (is) a difficult transition but I think it will be good for a change. New therapists, new equipment...

Let's see...I'm finally having eye surgery to hopefully correct severely double vision and it will prayerfully help the strabismus (shaky vision) on April 12th. (They won't do the surgery for the first 6 months.)

I'm still in a wheelchair but can walk unassisted with a walker, it just looks rough and isn't very efficient. My right arm and hand are gimpy - lots of tone. My speech is still slurred. I now have seizures (small ones that were only detected on an EEG, nothing that I even knew was happening, but I'm trusting that my neurologist knows what she's talking about) so I'm on medication for that. I still can't feel my right side and my left side is still jumpy.

But I'm alive!! We've seen huge improvements since the beginning, just slow progress lately. It's not easy, I'm not gonna lie, but I am thankful to be alive.

Elijah is adjusting well. It's taking him a longer time to attach/bond with me but we've recently seen great strides. I've been able to do more and more for him lately, such as getting him out of his highchair and crib, playing with him on the floor, etc. I'm still his Mommy even though I have some limitations right now. He's grown taller but is having a tough time putting on weight. The boy does not slow down!! He had his 2nd birthday in February.

Um...that's it in a nutshell. That took me like 2 hours to type so it may be a couple more months before you get another update. Don't be alarmed. :) I will leave you with pictures of my cutie.







16 comments:

  1. So thankful for an update and to know that you're doing better! It breaks my heart to think that all of this happened right as you had your son home to hold finally. So confusing and frustrating! But I'm very thankful Elijah made it home and that he is adjusting well! He's a beautiful little boy!

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  2. He is adorable. I'm praying for you to recover VERY quickly! I'm so glad you updated! Happy Easter to your precious family!

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  3. Thanks for the update. Praying for you and your family often.

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  4. I'm sorry you're having to go through all of these medical issues. Praying for you! Love the pictures!

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  5. I have been thinking of you often and praying you all are adjusting well. It sounds like the new therapy will be good and what great news about the eye surgery. Elijah is absolutely beautiful! We were matched with a little boy in Jan who turned one Feb 20... and now we wait. Update when you can and know there are many of us praying for your family across the miles.
    Natasha

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  6. Thankful to hear from you! I've been wondering how you are doing and how E is doing. I'll be praying for you, friend!!

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  7. He is ADORABLE!!!!!!! <3 My heart swells & my eyes are tearfilled as I think of your obstacles & yet you are overcoming! Prayers continue for you! That little boy of yours will be your healer! Keep those pictures coming! :-) He is scrumptious!

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  8. Hi Lisa,

    I know you must trust your doctors, but has your opthamologist told you the success rate of strabismus surgery and how many surgeries it may take to reach that success? We work with so many patients who had strabismus surgery only to realize that the underlying problem was not corrected and now they have scar tissue on top of the underlying problem. I wanted to let you know that we know a lady in Dothan, a doctor's wife, who had strabismus surgery, if you would like to talk to her about her journey I can contact her to see if she would be willing to talk to you. Also, I'm not sure if this is similar to what you are experiencing, but this book by neuroscientist Susan Barry, Fixing My Gaze, may be a good read for you and your husband.

    http://www.amazon.com/Fixing-My-Gaze-Scientists-Dimensions/dp/0465009131/ref=sr_1_5?s=books&ie=UTF8&qid=1365131277&sr=1-5&keywords=dr.+sue+berry

    I pray you receive full healing soon and can experience binocular vision in all its glory again in the very near future.

    Lesley

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    1. Thanks...it wasn't strabismus surgery exactly though :)

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