Saturday, July 11, 2015
So, I went to the optometrist...opthomologist...eye doctor yesterday at UAB. This guy is a specialist recommended by my neurologist. Right away he diagnosed me with oculopalatal myoclonus. This is the cause of the double vision and nystagmus. It is why my eyes do crazy things and I can't really answer if the images are horizontal or vertical with the double vision. It changes and everything jumps.
Apparently my palate (roof of my mouth) moves with my eyes. It's extremely rare, my eye doctors here would not be trained to have seen it. So rare that he a) called another doctor in to see it and she had never seen it in person and b) pulled out a tripod and video camera and video taped me. It was really awkward. :)
It's good to have a name for it, but it's hard to treat. He gave me a prescription to try that could help. This prescription can be used for tremors, headaches and the double vision & nystagmus! So I am praying and believing that this medication is the answer. God often works through modern medicine and I believe this is one of those times. Join me in prayer that the medication works!!